Chelsey, 33, from Kentucky, discovered her daughter Armani had a rare disease after an ultrasound at 17 weeks of pregnancy. Doctors were concerned about the possibility of fluid surrounding her heart.

“I had never heard of this diagnosis, I researched it and didn’t like seeing pictures of the disease. When I heard the news, I was very devastated and heartbroken. I didn’t understand what had happened, because I I have two other healthy children and I cry every day. I ask God why,” she said.

Chelsey said she and her husband never considered abortion, although it was mentioned almost immediately after it was discovered there were some major concerns for the unborn baby.

“The doctors actually predicted she had a 0% chance of living. They said she wouldn’t survive and probably wouldn’t cry when she was taken out of the womb,” Chelsey said.

Depending on the area of ​​the body affected, Lymphangioma can cause serious health problems including respiratory or vision problems.

Despite the doctors’ poor prognosis, Chelsey still has hope for her child. And luckily for Armani, experts say her condition can be treated with surgery.

After a difficult birth, Chelsey described how she felt when she first saw her baby: “I cried even more, because I had never seen anything like that. But I didn’t care what my baby looked like.” , I love you no matter what.”

Immediately after his birth, Armani and his family moved to a specialized hospital in Cincinnati, about 100 miles from home. During his three months here, Armani began to recover despite his health difficulties.

Armani currently has to undergo continuous treatment to remove excess fluid from his body, however, with a large amount of excess skin, the baby still weighs 9.5 kg and wears clothes for children about 1.5-2 years old.

Armani is expected to have surgery later this year, in which doctors will drain more lymph vessels, helping her body shrink. In the coming years, Armani will also continue to have surgery to remove all excess skin.